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New York Organ Donor Network
Web site Privacy Policy

New York Organ Donor Network, Inc. ("the Donor Network") operates this Web site ("the Site"). Use of the Site and associated Web microsites ("the Sites") are governed by the Conditions of Use ("COU"), which can be accessed via a link on our home page or landing pages.

New York Organ Donor Network has created this Privacy Policy to explain why we collect particular information and how we will protect your personal privacy within our Web site. The following discloses our information gathering and dissemination practices for the Web site located at the URLs www.donatelifeny.org and support.donatelifeny.org, as well as Web microsites that include but are not limited to www.savelivesnewyork.org, www.Don8LifeNY.org, and www.donationandreligion.org.

In order to fully understand your rights we encourage you to read this Privacy Policy as well as our Terms of Use. New York Organ Donor Network reserves the right at any time and without notice to change this Privacy Policy simply by posting such changes on our Sites. Any such change will be effective immediately upon posting.

Because we want to demonstrate our commitment to your privacy, this Privacy Policy notifies you of:

  1. What personally identifiable information of yours is collected through the Sites;


  2. Who collects such information;


  3. How such information is used;


  4. With whom your information may be shared;


  5. What choices you have regarding collection, use and distribution of your information;


  6. What kind of security procedures are in place to protect the loss, misuse or alteration of information under our control;


  7. and, How you can correct any inaccuracies in your information.


Questions regarding this statement should be directed to the New York Organ Donor Network by sending an e-mail to communications@nyodn.org. Please reference this Privacy Policy in your subject line.

What Information We Collect and How We Use That Information:

You may use the Sites without submitting any personally identifiable information (e.g., name, email or home address, telephone numbers, etc.). Any personally identifiable information that you submit may be saved in a database, and may be aggregated to generate non-personally identifiable information (i.e., information that cannot be attributed to any given individual). For example, a demographic profile of visitors to the Sites may be generated from the database. Non-personally identifiable information may be used by the Donor Network for any purpose. You will not receive any communications from us. Personally identifiable information will not be disclosed to any individual or business not affiliated with the Donor Network, except that (1) personally identifiable information may be disclosed when the disclosing party believes in good faith that law or regulation requires such disclosure; and (2) third party contractors may be provided with limited access to personally identifiable information in the course of operating and maintaining the Sites. Access to personally identifiable information by such contractors shall be limited to the information reasonably necessary for them to operate and maintain the Sites. The Donor Network shall obtain agreements from all such contractors to comply with the provisions of this Privacy Policy. We may track your IP address and your browsing activities (including but not limited to traffic patterns, click-stream patterns, search terms entered by users, and the URL of sites that directed you to the Site) but this information will not be associated with any of your personally identifiable information. It may, however, be aggregated to generate non-personally identifiable information, which we may use for any purpose.

Our Web site's optional log-in sign up forms require users to select a user name and password. The forms also require that users give us contact information that may include name, e-mail address, format preference (HTML vs. Text), address, interests, and similar information. We do not request or store sensitive information from our visitors, such as credit card or social security numbers. Users who sign up have the option at any time of opting out and will receive no further communications from the Donor Network.

Survey Information:

The New York Organ Donor Network's online surveys request information that includes: First and last names, e-mail address, and check-off boxes for questions such as whether the visitor would like to receive e-mails and/or postal mail from the New York Organ Donor Network. Because participation in online surveys is optional, visitors may choose to submit the surveys or skip this step.

Ambassador Program:

Visitors to our Site who log in with a user name and password have the option of subsequently providing the Donor Network with additional information, including self-identification of enrollment in the New York State Donate Life Registry. When the Donor Network is notified that the visitor has enrolled in the Donate Life Registry, they are automatically included in our Ambassador Program that promotes the need for organ, eye and tissue donors and enrollees in the Donate Life Registry.

Tell-A-Friend:

If a user (including an Ambassador) elects to use our referral service for informing a friend about one of our Sites, we ask for the friend's name and e-mail address. New York Organ Donor Network will automatically send the friend a one-time e-mail inviting them to visit the Site. The Donor Network stores this information for the sole purpose of sending this one-time e-mail.

Enrollment in the New York State Donate Life Registry:

The log-in/sign-in process and Ambassador Program are entirely separate from the course of action that involves enrolling in the New York State Donate Life Registry, which is a confidential database administered by New York State's Department of Health. Visitors have the option of notifying the Donor Network that they have enrolled in the Donate Life Registry.

By enrolling in the New York State Donate Life Registry, individuals 18 years of age and over give legal consent for the recovery of their organs, tissues and eyes for the purposes of transplantation and/or research at the time of their death. Registry information is kept strictly confidential and can only be accessed by a) Department of Heath employees when required for the performance of their official duties, b) federally regulated organ procurement organizations, c) New York State licensed tissue and eye banks and d) other entities formally approved by the Commissioner. Such access can only be for the purpose of identifying potential organ and tissue donors at or near the time of death.

Internet Protocol Address:

We collect an IP address from all visitors to our Sites. An IP address is a number that is automatically assigned to your computer when you use the Internet. We use IP addresses to help diagnose problems with our server, administer our Sites, analyze trends, track users' movement, gather broad demographic information for aggregate use in order for us to improve the site, and deliver customized, personalized content. IP addresses are not linked to personally identifiable information.

Use of "Cookies":

Our Sites may use cookies to enhance your experience while using our Sites. Cookies are pieces of information that some Web sites transfer to the computer that is browsing that Web site and are used for record-keeping purposes at many Web sites. Use of cookies makes Web-surfing easier by performing certain functions such as saving your passwords, your personal preferences regarding your use of the particular Web site and to make sure you don't see the same ad repeatedly. Many consider the use of cookies to be an industry standard.

Your browser is probably set to accept cookies. However, if you would prefer not to receive cookies, you can alter the configuration of your browser to refuse cookies. If you choose to have your browser refuse cookies, it is possible that some areas of our Sites will not function properly when you view them.

Security:

All information provided to New York Organ Donor Network is transmitted using SSL (Secure Socket Layer) encryption. SSL is a proven coding system that lets your browser automatically encrypt, or scramble, data before you send it to us. We also protect account information by placing it on a secure portion of our Sites that is only accessible by certain qualified employees of New York Organ Donor Network. Unfortunately, however, no data transmission over the Internet is 100% secure. While we strive to protect your information, we cannot ensure or warrant the security of such information. Notwithstanding anything contained herein to the contrary, the Donor Network makes no representations regarding the privacy of any information that you send to us while it is still on route from you to us, whether it be by mail, phone, fax, email, Internet, or any other method of communication.

Other Web Sites:

Our Sites may contain links to other Web sites. Please note that when you click on one of these links, you are entering another Web site for which New York Organ Donor Network has no responsibility. We encourage you to read the privacy statements on all such sites as their policies may be different than ours.

Contacting the Web Sites:

If you have any questions about this Privacy Policy, the practices of our Sites, or your dealings with our Sites, you can contact:

New York Organ Donor Network
132 West 31st Street
11th Floor
New York, NY 10001

You can also send an e-mail to: communications@nyodn.org.

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Address: 132 West 31st Street , 11th Floor, New York, NY 10001 | Phone: 646.291.4444 | Fax: 646.291.4600
24-hour Referral Line/Public Information: 800-GIFT-4-NY


© 2009 New York Organ Donor Network, Inc.